Reviewing spasticity management for people with neurological conditions

Lead: NHS Leeds CCG

Period: 31st Jul 2022 - 31st Jan 2023

We are reviewing how muscle spasticity clinics are run. We are running a pilot to include a specialist physiotherapist in the clinic's appointments.

What is muscle spasticity?

Spasticity refers to feelings of stiffness and a wide range of involuntary muscle spasms (ongoing muscle contractions or sudden movements).

Brief description of project

Some patients with neurological conditions (nerves or nervous system) experience muscle spasticity: interventions include injecting botulinum toxin (botox) into the muscles as well as therapy support and guidance which take place in a spasticity management clinic. Currently patients who need spasticity management appointments, are seen by a consultant. Sometimes patients are also seen by an occupational therapist or a physiotherapist.

We are reviewing how these clinic appointments are run, and an area we are considering is for a physiotherapist with a specialist understanding of spasticity and movement to join the clinic. We are running a six-month pilot to see if having both a consultant and a specialist physiotherapist working together in clinic will lead to an improvement in care.

Who will we speak to?

We will be talking to patients / carers who are being seen in the clinic during the six-month pilot.  There will be approximately 72 patients seen across the pilot and, as not every person will want to be interviewed, we are expecting to talk to around 50 patients / carers over this period.

What and how will we ask?

We are asking people to share their thoughts and experiences of using the spasticity clinic during the pilot. Including whether patients feel having a specialist physiotherapist together with the doctor in clinic is working well as well as their ideas of what could make it better. We will do this using one-to-one telephone interviews and an online survey.

How can you help?

There are a number of ways you can help support this piece of work.

If you have been seen in the spasticity clinic as part of the pilot, you can complete our survey online by clicking the button below.

Share your feedback

If you’d prefer a paper copy of the survey, or in a different format, or a telephone interview, please get in touch on the contact Helen Butters on hbutters@nhs.net or 0113 221 7777.

What will we do?

All the feedback we receive will be considered. We will analyse and theme the responses and write an engagement report that will outline the findings and provide recommendations to the commissioning team.

The report will be published on this website and also will be sent to anyone who shared their contact details in the survey.

If you would like to read more information about this engagement please see the downloads section below.

If you have any questions about this engagement please contact Helen Butters on hbutters@nhs.net or 0113 221 7777

Downloads:

Involvement plan (167KB)

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