Brief description of project

The NDL will look at how partners can work together to use data to improve health and care in the UK, including addressing COVID-19 and widening health and care inequalities. It will do this by identifying and analysing three data sets. The first data set will focus on shielded patients. Second data set will focus on children and young people’s access to mental health services and the third data set will focus on social care.

Working in this way enables us to better understand the health of our population and how they use services. This combined data enables us to plan and resource health and care for different populations. For example, dataset A might tell us lots of information about bowel cancer, dataset B gives us information about how cancer patients want to access services, dataset C tells us about how cancer affects certain people from diverse communities. By combining these datasets, we have a better understanding of bowel cancer services for this community. We can use the insight to design and pay for cancer services for this specific population.

Who will we speak to?

Involving patients and the public in this project is key.  We have created both a Steering and a Task and Finish group with specific patients and the public who have an interest in data and the topics we are focusing on.  We are also looking at “what we already know” which has influenced the topic selection.

What and how will we ask?

In topic one the analysis looked at the impact Covid-19 had on shielded patients.  Topic 2 is currently looking at mental health access for children and young people and topic 3 will be focusing on social care.  We are currently looking at what matters to the people of Leeds around social care in order to come up with our third analytical question.  We have used several methods to ensure that the public voice is at the heart of the project. This includes workshops, regular group meetings and analysing insight already captured by surveys.

How can you help?

There are several ways you can help support this piece of work.

We’d appreciate any help you can give in sharing this piece of work with anyone you feel would be interested. This includes family members, neighbours, friends and on social media.

If you’re a member of a Patient Participation Group (PPG) at your GP practice, we’d encourage you to share this work with your group and think about how you might support this work. If you would like to talk about how your PPG could be involved feel free to get in touch on the contact details below.

What will we do?

We will ensure that the patient voice is a continuum within this project.  A framework has been created which evidences how we will involve patients and the public throughout the analytical process and you can read this below.

Reports following each topic will be published on the website

If you have any questions about this project please contact Helen Butters on hbutters@nhs.net.

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