Support Needs of Parents/Carers of Children and Young People Dealing with Mental Health Issues

Lead: NHS Leeds CCG

Period: 4th Oct 2018 - 11th Nov 2018

An engagement to understand what support parents and carers need if a child or young person they care for requires mental health support

Brief description of project

The aim of the engagement was to find out from parents what information and support they need in order to support a child or young person in their care that is experiencing poor mental health.              

Who did we speak to?

We received feedback from 277 parents and carers who were looking after children with poor mental health.

What and how did we ask?

We wanted to know:

  • Which mental health services parents and carers were accessing on behalf of their children
  • What they thought of those services.
  • What support parents and carers need from mental health services in the future

We used a survey to understand people’s views. Information about the engagement was promoted using social media and on a number of the CCG and Voluntary Action Leeds newsletters and bulletins.

What did people tell us?

People had mixed views on existing services. Most people told us that they received good support from services and that staff were knowledgeable about mental health. People also told us that they wanted to access support directly from a health professional and through their children’s school.

Other key findings included:

  • Waiting times for initial assessments are too long
  • Communication between services needs to be improved
  • There is a lack of understanding amongst staff about additional needs and learning disabilities
  • There is a lack of clarity around available services and support

What did we do?

  • To reduce the waiting times we have implemented a recovery plan for Child and Adolescent Mental Health Services (CAMHS) to reduce the 12 week target. To support children and young people during their wait we have set up a free online counselling service.
  • We are working to improve communication between mental health services in Leeds.
  • It has been agreed with our city partners that work will commence to develop an improved integrated service for children with autism with an aspiration to become an Autism friendly city.
  • We will review gaps in information available to people caring for children with poor mental health.

If you would like to read more information about this engagement please see the downloads section below.

If you have any questions about this engagement please email us at or call  on 0113 84 35450.