End of Life Care – Single Point of Access

Lead: Leeds West

Area: Leeds North, Leeds South & East, Leeds West

Period: 9th Sep 2014 - 29th Sep 2014

End of life care is about caring for people who have an advanced, progressive and incurable illness so they can live as well as possible until they die. It is about providing support that meets the needs of both the person who is dying and the people close to them.

What are we planning to do?

In 2013 a survey was carried out to get the thoughts of patients, relatives, carers and staff about health and care services for people at the end of their life. The survey found that people struggled to get medical support in the evenings and at weekends, and that it can be difficult to know who to contact when extra support is needed.

We are looking at setting up a brand new free telephone service, exclusively for patients in the last years of life and their relatives / carers to use. The aim of the service would be to improve the care of patients and their relatives / carers and support people in their own home. The service would be available 24 hours per day, 7 days a week, 365 days per year. If a patient or their relative / carer has any concerns or questions about their condition they can call the telephone line at any time of the day or night. Our plan is that the service will be provided by experienced nurses who can give telephone advice, organise patients to be visited by healthcare professionals, arrange additional support for patients in their own home, and provide information about other services available.

Why we need your views?

We want to know what you think about our plans for a 24/7 telephone service for people at the end of life and their carers. This will help us develop a service that meets the needs of local people.

This engagement has now closed and you can view the final engagement report by clicking on the link below.

This consultation ran between: 09/09/2014 – 29/09/2014

Downloads:

Engagement Report (1.46Mb)

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Engagement Plan (323KB)

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Single Point of Access Survey (100KB)

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Following the patient and carer engagement we held a stakeholder meeting to begin developing our plans for a single point of access for people at the end of life and their carers. The meeting was attended by key stakeholders from across the city including the voluntary sector, the public sector and a number of patients and carers.  A short report from the meeting can be found below.

Downloads:

Stakeholder Report (711Kb)

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