Best Start Project – Children with Complex Needs

Lead: Leeds South & East

Area: Leeds North, Leeds South & East, Leeds West

Period: 2nd Dec 2013 - 28th Feb 2014

NHS Leeds South & East CCG is currently reviewing a better pathway for children (age 0-5 years) with complex needs on behalf of the city.

Children with complex health needs and/or disability form a relatively small number of the total child population (approximately 8% nationally).

Existing criteria, assessment processes and service provision are reported as complex, difficult to understand and navigate by both families and professionals. There is little evidence of co-ordinated assessment meaning that families have to repeat their stories many times to different professionals. Services operate in isolation and are based on processes and inputs rather than children’s outcomes.
The aim of the project is to improve the experience of services for children and their families from pregnancy to age five. Parents, children and professionals will work together to design, improve and streamline the pathway of support.

The project will focus on the experiences of parents and children and find solutions with professionals for the critical areas where things need to improve. We are at the very beginning of this piece of work, and as such, the engagement plan will change and grow as parents are the heart of this plan.

Between December and mid February parents and carers will be asked their views on the current pathway and front line staff will be asked how they think the experience for parents and carers could be improved. A focus group with both parents carers and front line staff will be organised for themes to be delved further into – a final focus group will happen in March to look at co-producing solutions.

This consultation ran between: 02/12/2013 – 28/02/2014