Patient Reader Group

The patient reader group is a group of patients who review patient literature and help us improve the quality of information. This guidance helps staff to prepare documents for the patient reader group. It also helps patients to assess the information and decide if it is suitable for the audience.

Why do we have a reader group?

Evidence suggests that involving patients and the public helps us produce more effective literature. To support this, the NHS Leeds CCG has a reader group made up of patients, members of the public and NHS staff. The group are trained to ensure public documents are written in plain English and are understandable to different communities in Leeds.

We want to involve patients, carers and the public in every part of the process:

  • identifying the need for and purpose of our document/leaflet
  • developing the format and content
  • disseminating and evaluating our materials

How does it work?

We send out (via email or post) documents, videos, and other literature to our reader group members. Following the guidance provided (developed by the reader group), the members provide their constructive feedback in order to inform what the final version of the literature will look like. You can view the guidance below in the ‘downloads’ section.

Check out the ‘current opportunities’ below to see what is available to feedback on.

We are always on the lookout for more people to join our patient reader group. If you are interested or want to know more, please email adam.stewart1@nhs.net or call 0113 843 5470

Current Opportunities for Feedback:

ACE Cancer Programme – Patient Survey

The aim of this survey is to enable us to gain a better understanding of the quality of care and service we provide to patients. Opinions and suggestions are important to us and will help us improve the Leeds Accelerate, Coordinate, Evaluate (ACE) Multidisciplinary Diagnostic Collaborative (MDC) service.

For more information and to give your feedback on the survey, click the button below.

Have your say on the ACE Patient Survey

What has the reader group been involved with previously?

Offers to send documentation, surveys, leaflets, web pages or animations are open to organisations throughout Leeds who would like their information reviewing by the group.

Since 2016, the reader group has reviewed 29 different bodies of information and given their feedback to make improvements. Some examples of what the reader group has been involved with includes:

  • Developing guidance for the reader group.
  • Reviewing active signposting posters from various areas in order to inform the development of one for the Leeds area (led by the NHS Leeds CCG).
  • A set of standard and easy read patient information leaflets for managing diabetes footcare (led by the NHS Leeds CCG)
  • A patient information leaflet about Clostridium Difficile (C.Diff) for Leeds Community Healthcare
  • A citywide Patient Participation Group leaflet for practices around Leeds.
  • The engagement document and survey for the Shakespeare Walk-in Centre engagement.
  • An outpatient letter for Leeds Teaching Hospitals Trust (LTHT).
  • A service user information leaflet on diabetes for Leeds and York Partnership Foundation Trust (LYPFT).

We ask organisations making a request of the reader group to consider the themes and key points of feedback and respond to each one to explain how they have (or haven’t) incorporated or addressed an idea or issue.

Please see an example below of the themes from the reader group on the diabetes footcare leaflets and how the team took on board the feedback from the reader group to make improvements to the documents:

 

Theme

 

Response (to be completed by requesting staff member)
Consider the terms used on the back page (with graph) Is it clear/easy to understand? We are intending to remove the graph as we accept this isn’t particularly easy to understand.
Font size/visual clarity of text The font size has been increased to at least ‘12’ across all of the leaflets
Make graph clearer/more defined if possible We are intending to remove the graph as accept this isn’t particularly easy to understand.
Check for consistent use of terms throughout documents Noted and have amended.
Check documents for wording used, grammar issues and sentence structure (see feedback) Noted and have amended.
Is the email address provided correct? Yes. Email is correct
Are all the images in the easy read document accurate/clear in what they are trying to depict? We have asked the designer to look at alternative images where available
You need to make this accessible to people whose first language is not English There is a statement on all of the leaflets- –Would you like this leaflet in an alternative format? For translation of this document or a version in large print, braille or audio, please contact…” We are also intending to translate the foot leaflets into Urdu and Polish anyway as identified as greatest need.
Think about other ways you can circulate this message We are intending to distribute information via patient groups e.g, Diabetes UK, JDRF, producing banners that will rotate around GP surgeries and running 3 patient/carers workshops in Summer 2018 on ‘looking after diabetic feet’

You can view the finished leaflets here: https://www.leedsccg.nhs.uk/publications/diabetes-foot-care/

Downloads:

Patient Reader Group Guidance (309KB)

In order to view PDF documents you will need Adobe PDF Reader